Use of Your Data in Research

COVID-19 and Stress Study

IRAS number: 282935

As a participant in a research study sponsored by the University of Nottingham we are providing you with some additional information about the use of your personal data, which is data from which you can be identified.

Your information will be kept strictly confidential, stored in a secure and locked office, and on a password protected database at the University of Nottingham.  Under UK Data Protection laws the University is the Data Controller (legally responsible for the data security), Jisc are the providers of the online surveys and act as a data processor (securely processing your data on behalf of the University) and the Chief Investigator of this study (named above) is the Data Custodian (manages access to the data). This means we are responsible for looking after your information and using it properly. Your rights to access, change or move your information are limited as we need to manage your information in specific ways to comply with certain laws and for the research to be reliable and accurate. To safeguard your rights we will use the minimum personally – identifiable information possible.

You can find out more about how we use your information and to read our privacy notice at: 

https://www.nottingham.ac.uk/utilities/privacy.aspx 

The data collected for the study will be looked at and stored by authorised persons from the University of Nottingham who are organising the research. They may also be looked at by authorised people from regulatory organisations to check that the study is being carried out correctly. All will have a duty of confidentiality to you as a research participant and we will do our best to meet this duty.

Hair samples may be analysed at the University of Nottingham or sent for analysis to a commercial laboratory. Samples will be labelled with a study number only and there will be no way for the laboratory to know who you are.

Your contact information will be kept by the University of Nottingham until the end of the study so that we are able to contact you with instructions about returning hair samples and follow-up surveys as detailed in the participant information sheet. This information will be kept separately from the research data collected and only those who need to will have access to it. Personal information will be deleted from the online survey platform (Jisc) at the end of the study.  All other data (research data) will be kept securely for 7 years.  After this time your data will be disposed of securely.  During this time all precautions will be taken by all those involved to maintain your confidentiality, only members of the research team given permission by the data custodian will have access to your personal data.

In accordance with the University of Nottingham’s, the Government’s and our funders’ policies we may share our research data with researchers in other Universities and organisations, including those in other countries, for research in health and social care. Sharing research data is important to allow peer scrutiny, re-use (and therefore avoiding duplication of research) and to understand the bigger picture in particular areas of research. Your data will be anonymised when shared in this way.

What will happen if I don’t want to carry on with the study? 

Your participation is voluntary and you are free to withdraw at any time, without giving any reason, and without your legal rights being affected. If you withdraw we will no longer collect any information about you or from you but we will keep the information about you that we have already obtained as we are not allowed to tamper with study records and this information may have already been used in some analyses and may still be used in the final study analyses. To safeguard your rights, we will use the minimum personally-identifiable information possible.

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For further information and press enquires please get in touch. 

 

United Kingdom participants contact us : covid19andstress@nottingham.ac.uk

New Zealand participants contact us: covidstudynz@gmail.com

© 2020 COVID Stress Study